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Positive MS News: April 2014

Positive MS News: April 2014

Research results

  1. Enhanced uptake of multiple sclerosis-derived myelin by THP-1 macrophages and primary human …
    7thSpace Interactive (press release) – The pathological hallmark of multiple sclerosis (MS) is myelin phagocytosis. It remains unclear why microglia and macrophages demyelinate axons in …
  2. Textured insoles could be a positive step for people with MS
    UQ News – University of Queensland…

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9 years on…

9 years on…

or-me-greeting-locked-love-quotes-Mes-pics-pr_252525C3_252525A9f_252525C3_252525A9r_252525C3_252525A9s-Misc-naughties-friendship-sayings-quote-love-note-Quotes-Sayings-you-only-Aleks_large_largeTomorrow, April 11th, is my
9th anniversary of my MS diagnosis.
A lot has changed since then,
but I also gained so much.
New friends, new life and love all
around (though still deliberately single).
Everyone I know is in my life
for a reason, and if you’re not yet…
just send me a friend request :D
Lots of love to each and everyone of you, Billie
xxx

1383340_10200866383157169_1060734002_n© WVE and Ireland, MS and Me, 2011-2014.…

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Positive MS News: March 2014

Positive MS News: March 2014

A little bit later than usual, for which I apologise, but here is the good news that graced global media in March 2014.

  1. Scientists one step closer to treating multiple sclerosis
    The Columbiachronicle – The recent discovery of a new type of blood cell may lead to strides in the treatment of multiple sclerosis, an autoimmune disease
  2. UVA Offering MS Medication Trial as Part of National Network
    NBC…

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Wise words

While I’m not a religious person, I do respect others who are. Perhaps with the dawn of Pope Francis, I am starting to feel more open to experiencing religion. It was with this in mind that I stumbled onto a nice poem by Pope Francis that I wish to share. So for everyone, religious or not, this poem is for you. Enjoy as I have enjoyed reading it and feel free to share and reblog.

Don’t cry for…

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The sorry state of neurology in Ireland: one year on

New blog post… “Due to the nature of neurological conditions, some patients need a large set of physicians and therapists, sometimes up to 40 healthcare professionals, then the question indeed is one of how you can balance governmental budgets versus life value of life and life expectancy of a neurologically ill person. Pharmacoeconomics have a strong a hold over patients, but the HSE has an even stronger hold, and this needs to stop.”

The sorry state of neurology in Ireland: one year on

New blog post… “Due to the nature of neurological conditions, patients sometimes require up to 40 healthcare professionals. The question indeed is one of how you can balance governmental budgets versus life value of life and life expectancy of a neurologically ill person. Pharmaeconomico organizations have a strong a hold over patients, but the HSE has an even stronger hold, and this needs to stop.”

The sorry state of neurology in Ireland: one year on

The sorry state of neurology in Ireland: one year on

IfYourActionsNeverChangeYourWordsBecomeMeaninglessOn February 27th, 2013 I joined a meeting in Leinster House organised by the Neurological Alliance of Ireland (NAI) to highlight the sad state of neurology in Ireland. What I heard and saw that day is still very much etched onto my memory because of the impact it had (see blog post of 2013 here).

It was with great interest so that I attended the launch last week of the results of the 2014…

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Relentless relapse

b3a3f8544e17c20f8e5847c1ec8b2b88Why? A relapse decided to visit me. I pretended it wasn’t there. Until this morning. It smacked right bang in the middle of my head. It couldn’t find a better place I suppose. As weak as an overcooked spaghetti string. A 40min cooked spaghetti string. Unable to stay awake; Vikingsdeserve better than that. Pins and needles. No, I’m not designing new clothes. Neuropathic pain. Que? Yes. Nerve pain.…

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The first day

New blog post… “Rather happy, knowing there’s actually a name attached to that funny feeling of floors moving up and down, to that awful, wretched facial pain also called the “suicide disease” because of the severity of the pain. Just happy that somehow, knowing which illness now lived inside my brain, was half the battle won already.”

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